The TBPod

Understanding the Patient Tuberculosis Experience with Sarah Bernays

Actnet

Associate Professor Sarah Bernays, co-director of the Masters of Global Health program at the University of Sydney, leads a social science research program focused on community engagement in infectious disease prevention, treatment, and care. Her work emphasizes understanding how individuals, households, and communities respond to health adversity, risk, and vulnerability while fostering resilience and hope.

In this episode, we explored the perspectives of tuberculosis patients, the challenges they face in accessing and receiving clinical care, and methods to identify what truly matters to them. We also examined strategies for clinicians and researchers to enhance their approaches to interventions. Finally, we highlighted the importance of cultural contexts and the value of patient expertise in shaping effective care.

1. Person-centered and youth-oriented interventions to improve TB Care for adolescents and young adults: https://doi.org/10.1371/journal.pgph.0003659